Frustrations.

Unfortunately, I am the type of person who gets frustrated and irritated far too easily. I definitely notice on days where I don’t get enough sleep, (which is like always. I mean, who gets enough sleep in college?), that my POTs symptoms are way worse which makes me feel sad which makes me feel annoyed that I can’t be normal which makes my frustration snowball keep rolling and build and build upon itself. The good news is that I think I’ve gotten better at controlling my irritations, the bad news is I’m still not perfect at it. There are some days where I just snap-whether it be at my family, my boyfriend, or myself. I say things that I would rather I didn’t, or I roll my eyes when it is completely uncalled for. And this makes me sad when I reflect on it. If anyone has any tips to control expressing irritation in probably inappropriate ways then please let me know. I would love to do a little bit of self-improvement in this aspect of my life.

edit: As I’m reading this, I realize that it makes me seem a little bit like a moody, unpredictable teenager with an inability to control her emotions-but I assure you this is not the case… not completely at least! 😉

With every day that passes, it all feels

With every day that passes, it all feels more and more real.  It wasn’t so long ago that I was sitting in my elementary school hallway with my best friend, having my father read “Clifford, The Big Red Dog” to us.  We would beg him to stay longer, even though we were supposed to head back to class, and he would find a nice spot around the corner to read one more book to us.  

And it feels like just yesterday that same girl and I were stuck in traffic exiting the Taylor Swift concert, talking about how in just a few months, we would be officially college students.  I remember we looked at each other in silence, and just shook our heads in disbelief.  

I have registered for classes, chosen my major, and have gone through every advising I could possibly go through.  I even have been assigned my dorm room and hall.  It’s all moving so rapidly; I don’t even have time to soak it in.  

A few months ago, I had decided that I wasn’t going to live on campus.  But after long discussions, tear fests, and late-night racking of my brain, I have come to the firm decision to at least try to live on campus.  I mean, I am provided with the best dorms on campus at Barrett.  I got registered with the Disability Resource Center and they have done and will continue to do incredible things to help me feel at ease throughout my college experience.  They even put me in my very own room so that I can relax and cool down when I’m not feeling all there.  And even better, I share a bathroom with my best friend, and she will always be willing to lend a hand on those days.  

Things seem to be falling in place, we went shopping for decor and had no issues deciding on a color scheme, we’re both the same major, and I actually think I’ve gotten some great professors.  

But my God… I’m nervous.  

I’ve never been good with being away from home, and more specifically, from my mother.

It has been something I’ve struggled with for my entire life, and probably will continue to for the rest of it.  There is no doubt that I improve with every single day that passes, but I hate change. Especially change that involves being away from her and home.  

This whole summer I have been working on being away from her and home, just to try and adjust for University.  (This is partially why I have been MIA lately).  I’ve been staying at my cousin’s condo while he is out of town frequently (where I am right now), and I have been staying at friends’ houses as well.  These, though seemingly simple-sounding, are HUGE hurdles for me to have overcome.  It wasn’t too long ago that I could barely spend a full day away, let alone upwards a week.

But last week I took the plunge.  I never thought it would be that hard.  My boyfriend and I decided to travel to San Diego for 4 days and 3 nights.  I was so excited and not nervous at all. After all, close to nobody calms my nerves like him.  

We drove there with no issues, and we hit mission beach and laughed and ate and simply had a blast.  But then as evening fell, and we hit those California Highways, tears started streaming down my face.  They wouldn’t stop.  Nothing I did worked, and it hasn’t felt that bad since I was younger.  Not even Zach could calm me.  We got to the wonderful hotel and I curled up in a ball and sobbed for hours.  I felt horrible for being such a downer, which only made me sob more.  I was panicking and hyperventilating.  I called my mom and we talked for a while until I calmed down.  In my mind I just kept thinking, “I wanna go home.  Please let me go home.  I can’t do this.  I’m not ready.  College isn’t right for me, I can’t move out.”  

I felt better for a little and then it started again.  This was the cycle for the entire night.  

But I got through it.

It was sadly one of the hardest things I ever had to do.  But it was also one of the only times I really forced myself to do something I didn’t want to go through with.  By the second day, I was fine.  I had a blast.  We created so many memories and had so many good laughs, and I feel so proud of myself.  I never, not in a million years, thought I could have done that.

But I did.

And I feel more ready then ever.  

Oh No, Another One of “Those” Posts

Warning: Rant Post Ahead! 😉 

Why don’t people understand?  I’m so frustrated with my peers, my friends, and just human beings in general.  I feel like there is no such thing as common sense to other people, or even just a bit of sensitivity.  I was told as I grew up to let unkind words simply roll off my back.  That they weren’t worth my time or energy, and that they are usually said out of ignorance or jealousy.  This concept always remains in the back of my mind while I endure the forceful strike of nescient words, yet somehow these muttered phrases continually breach my protective barrier.

Yes, I realize that I may be a teeny tiny bit sensitive, commonly letting upsetting situations replay in an infinite loop in my head every night.  I also realize that people don’t always have bad intentions behind their words.  With this being said, I still can not comprehend how some things get through people’s mental “filter”.

About a month ago I had a doctor’s appointment in which she decided to fill out some forms to help me apply for a handicap plaque.  (This is mainly to be used in the summer and at college next year where parking is horrendous and I would be forced to walk lengthy distances).  I went to the DMV and successfully obtained it.  It was a weird experience.  I walked past the mass amounts of grumpy people waiting for their number to be called, gripping my new handicap plaque close to my body, in an attempt to mask it.  It peeked through and I could feel the sharp stares of these strangers as they followed me with their eyes.  I could just imagine what they were thinking… “Why does she need that?  She looks perfectly healthy.”  “She can walk just fine, she doesn’t deserve that.”

I felt tremendous guilt and shame for obtaining something that is usually reserved for the elderly and people in wheel chairs.  For this reason, I vowed I would only use it when I absolutely HAD to, leaving the spaces for people worse off than I am.

This brings me to one day at school.  I wasn’t feeling well at all, and it has finally hit 100 degrees where I live.  I decided to park in the handicap at school for the first time, since no one ever parks there anyways.  I figured the extra steps saved by parking closer, would provide me some extra energy to perform well in school.

I pulled in and grabbed my backpack and started my trek to my classroom.  Next thing I know, I hear the sound of wheels blazing across the concrete toward me.  I hear a shout, “You wait right there!  Hey!  You!  Come back here!”  I turn around and see my school security guard speeding up to me in her golf cart (which I have yet to see her step foot out of).  “You parked in the handicap space.”, she informs me.  “Yes, I did.  I have a handicap plaque hanging in my window”, I reply.  She proceeds to curtly state that I was not handicapped and that she doubted me when I said I was and that I got it from my doctor. I’m horrible at handling situations where I am being confronted by authority, so I stuttered my way through an explanation of what POTs is, and why I need it on some days.  She gave me a smirk and sped off.  I stood there, hurt, and in awe at what just happened.  I slowly walked to my next class, (art, thankfully), and started to take my frustration out on my painting.  Next thing I knew, there were tears steaming down my face and falling on my paper, creating a tiny puddle that my classmates stared at.  I attempted to wipe my tears away discreetly and pass it off as allergies.  I had never felt so low, and I’m not exactly sure why this hit me so hard.

Just when I began to get over this, my friend asked me for a ride home.  I obliged, and she followed me out to my car.  This friend of mine has never been the most sensitive person, so I shouldn’t have been surprised when she expressed disapproval for my handicap parking.  “Why are you parked in the handicap spot?”  “My POTs, remember?”  “Oh.  But you’re not handicapped…  You don’t really need that.”  I again, tried to stutter my way through an explanation of my heat intolerance and how any energy saved is beneficial to me.  She blankly stared back at me, then looked down at her phone and texted in silence the whole way home.

I’m just sick of people jumping to conclusions and assuming that things come easily to me in life.  That I “cheat the system” and that I just take advantage of what I deal with to get special treatment.  Just this morning, I was talking to my friend  before school.  I told him I didn’t have a class until 4th period, and he asked why.  I told him about my POTs and his only response was, “Oh.  I wish I had something like that so I could sleep in and miss school.”

How I’ve felt lately…How do I get out of this slump?!

I guess that statement is what pushed me over the edge and “inspired” me, (for lack of a better word), to write this post.  I apologize from the bottom of my heart if this post sounds whiny or makes me come off as a “Negative Nancy”.  I just felt that I had to release my frustrations some how so I could carry on with my day as normal.  What better place to vent than to the people who understand what I’m going through better than anyone else?

Thank you so much, to each and every one of you.  You all really keep my going, your comments, your individual posts, your inspiring/motivational words; it really means more to me than any of you probably realize.  Love you, guys!  🙂 ❤

Those days.

I just wanted to take a moment to talk about a person in my life who has been there for me since day 1 of my POTs journey.

This is my best friend, Robyn. Since the day I met her, she has been a total sweetheart and the most caring and supportive person I know. She always is willing to sit with me and listen to me, and make me feel better when I have those days. There are few people out there like her, and all I know is that I’m blessed to even know her.

When someone is going through a chronic illness, they really need the support of the people around them. It makes a world of difference. When my spirits are high, I know I feel better physically as well. 🙂

I’m feeling rather lonely today. Robyn is in Dubai right now and has been gone for a couple of months. 😦
I miss her like crazy.

I guess today is just going to be one of those days…

Hope everyone is doing well.

Xoxo,
Jenna

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