Hi all! I feel like I say this every time, but I apologize for going MIA once again! I underestimated how busy I would be this year, with college right around the corner.
The past few weeks have been hectic for me, lots of calls to the doctor, a couple appointments, and I’m still not feeling better.
I have a tendency towards sinus infections, which definitely make my POTS symptoms worse. My head has been pounding, I’ve been exhausted, my eyelids feel like they weigh a hundred pounds, and the left side of my face feels so weird. While I’m in class, the only thing I can seem to think about is going home to sleep.
My doctor put me on cefdinr because that has worked in the past. I went on that for a week and I still felt awful. So the next week I went on my second dose and felt mildly better. To knock it out, my doctor put me on prednisone. (Which is a type of steroid.). I was on that for five days, (with horrible side-effects) and the day I went off it, my head felt worse. I tried to let it get better on itself, so I waited a few weeks.
But two days ago on the way to class my head started pounding, my left eye was red, and it hurt down the whole left side of my face. My Mom and I both agreed I needed to see a doctor again.
So I found myself inside my general pediatrician’s office once again on Monday. When I was little, I was one of those weird kids who loved going to the doctor. I would get an overwhelming feeling of excitement upon entering. Everything was just so interesting to me.
It’s the opposite now.
I have the routine down to memorization now, I know most of the medical assistants and staff members, and I also can predict what they are going to say to me.
I sighed as I walked in and sat down in the waiting room in the same spot I always sit in -the corner of the room against a wall. It’s the warmest spot in the whole place.
“Jenna?” called the medical assistant. I got up and completed the mundane routine. “Weight -check. Height- check. Hey that’s weird…they didn’t take my blood pressure today…”, I thought to myself. The lady taking care of me had one of those high pitch fake happy voices that made me irritated. I waited in my room for what felt like forever when finally my doctor came in.
She always wears hello kitty outfits.
I told her my symptoms, she flipped through the computer, and I reminded her of my POTs and how I feel it’s making everything worse. “Your what?” she asked. “POTs. My neurologist diagnosed me with POTs. It’s in the letter he wrote to you.”. (I have to do this every time). “I don’t even know what that is.” She said with a chuckle. “Of course you don’t…”, I thought to myself. She proceeded scanning the letter and then she exclaimed “Oh! Postural Orthostatic Tachycardia Syndrome! I thought it was something more serious.”. UM WHAT? Obviously she still doesn’t know what it is.
My mom and I were irritated with this statement. That’s when my mom said “No offense to you guys, but we are really sick of coming here. We want to figure out what is wrong.”. My mom always knows how to sum everything up in few words.
That’s when my doctor pushed me over the edge: “Well your throat isn’t red, your glands aren’t swollen, you have no fever…” she said while examining me, “Jenna how have you been feeling… emotionally?
You have got to be kidding me.
“It could be possible that you are depressed” she claimed as she gave me a sympathetic look. “the mind and body work in mysterious ways.”
“I’m not depressed, I’m actually a very happy person. My head just hurts. All the time. And I feel like its my sinuses.”
“Okay… Well I guess we could do a quick X-ray to check.”
Thank you! I didn’t come in there for a psych Eval. I have had a history of depression and anxiety, so I know what it feels like. And I know for a fact that’s not what it was. I’m sick of doctors jumping to the conclusion that I’m crazy or something. When will they ever believe me?
So I had my X-ray, and she called me yesterday with the results. They found a mass behind my left cheekbone in the soft tissue. It is possible that this could be causing all the pain. I have to see an ENT on Friday to find out what it is for sure. I’m a little worried, but I know the chances of it being dangerous are slim. I hope that they can get rid of it, so I can get my energy and sanity back.
I hope that those results made her feel bad for what she said to me. I know she is just trying to do her job, but my
Patience is wearing thin.
I know a lot of you guys have had similar experiences with doctors assuming it was all mental. I’d love to hear about them.